Ondokuz Mayıs University (OMU) Havza Physical Therapy and Rehabilitation Center has made history by treating a disease never before recorded in the world. Asel Sena Tengiz, a 15-year-old high school student living in Atakum, found a solution to her rare condition at OMU.
Asel was battling a condition called “Spontaneous Bilateral Sternoclavicular Joint Dislocation,” characterized by the spontaneous dislocation of the clavicle from the sternum and scapula without any apparent cause.
Highlighting the uniqueness of this case globally, OMU Faculty of Medicine Hospital Havza Physical Therapy and Rehabilitation Center’s Head Physician, Prof. Dr. İlker İlhanlı, explained:
“Our patient has a rare condition, and only 60 cases of it have been reported worldwide since 1979. The condition involves the bilateral spontaneous dislocation of the joint connecting the clavicle to the sternum. What makes our patient unique is that her condition affects both sides. Only ten such cases have been reported globally to date. Additionally, she also experienced spontaneous dislocation in the joint connecting the clavicle and scapula, making this the only case of its kind in the world.
We developed a personalized treatment and rehabilitation program for her and achieved entirely successful results. She no longer experiences dislocations, her posture has significantly improved, and the issues with her joints have been resolved. Due to its uniqueness, we will present this case in the medical literature. We believe this will serve as a guide for many physicians encountering similar cases in the future.”
Sharing her struggles, Asel Sena Tengiz said:
“I first noticed my condition a year ago when I raised my arm. It happened spontaneously and without any reason. We consulted many hospitals and doctors. Most of them recommended surgery. However, upon researching, we learned that surgical intervention could cause complications in the future. Finally, we consulted Dr. İlker İlhanlı. After a year of physical therapy, we saw results. Being the only known case in the world, academic studies were conducted on my condition. Although the treatments were experimental, significant progress was achieved.”
Physiotherapist Elif Ulukan, who oversaw Asel’s treatment process, stated:
“We designed a completely personalized treatment program for Asel. By using breathing exercises and taping techniques, we achieved significant advancements. The success achieved for Asel, who is the only known case in the world with these characteristics, has made us all very happy.”
Asel Sena Tengiz continues her treatment and is improving daily, thanks to the innovative treatment methods developed at OMU.